Noonan Syndrome: "The most common rare disease you've never heard of"

桃色视频 researchers have been surveying families from across the UK as part of a project that aims to better understand the social and emotional impact of living with Noonan Syndrome.

<p><strong>Additional content:</strong><br /><a href="https://loughboroughuniversity.s3.us-west-2.amazonaws.com/Video+Content/2024/Noonan+Syndrome/Social_1080x1080_Noonan+Syndrome_Overview+2_Andrea.mp4" target="_blank" rel="noopener">Overview teaser 2</a></p> <p><strong>Stories:<br /></strong><a href="https://loughboroughuniversity.s3.us-west-2.amazonaws.com/Video+Content/2024/Noonan+Syndrome/Edit_1920x1080_Noonan+Syndrome_Mark's+Story_V2_Approved_27-02-24.mp4" target="_blank" rel="noopener">Mark's Story</a></p> <p><a href="https://loughboroughuniversity.s3.us-west-2.amazonaws.com/Video+Content/2024/Noonan+Syndrome/Edit_1920x1080_Noonan+Syndrome_Andrea's+Story_Approved_27-02-24.mp4" target="_blank" rel="noopener">Andrea's Story</a></p> <p><a href="https://loughboroughuniversity.s3.us-west-2.amazonaws.com/Video+Content/2024/Noonan+Syndrome/Edit_1920x1080_Noonan+Syndrome_Matilda's+Story_Approved_27-02-24.mp4" target="_blank" rel="noopener">Matilda's Story</a></p>

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